Annals of African Medicine
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Year : 2020  |  Volume : 19  |  Issue : 4  |  Page : 252-257

Knowledge and attitude of patients with adrenal insufficiency

1 Department of Endocrinology, Diabetology and Nutrition, University Hospital Hassan II, Fez, Morocco
2 Department of Endocrinology, Diabetology and Nutrition, University Hospital Hassan II; Faculty of Medicine and Pharmacy, Sidi Mohamed Ben Abdellah University; Department of Epidemiology and Research in Health Sciences, University Hospital Hassan II, Fez, Morocco

Correspondence Address:
Dr. Toumader Bouziane
Department of Endocrinology, Diabetology and Nutrition, University Hospital Hassan II, Fez 30000
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Source of Support: None, Conflict of Interest: None

DOI: 10.4103/aam.aam_63_19

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Background: Adrenal insufficiency (AI) is a rare and a dangerous disease requiring a life-long glucocorticoid replacement therapy with dose adjustment in stressful situations which is linked to patient's knowledge and understanding. The aim of this study was to explore AI patients understanding regarding their disease, risk factors of adrenal crisis, as well as their attitude in stressful situations. Materials and Methods: We prospectively enrolled from October to January 2017, all patients with adrenal insufficiency (primary or secondary) treated and followed up in the Department of Endocrinology at University Hospital Center Hassan II of Fez. Patients were asked to fill out a questionnaire to assess their self-perceived subjective understanding to objectively evaluate their knowledge. Results: A total of 55 AI patients participated in this study. Overall, 74% of patients had no sufficient understanding of their disease; more participants gave incorrect answers to how to act in different stressful situations. Eleven patients (20%) did not possess a “steroid warning card,” twenty-five patients (45%) had the injectable hydrocortisone (HC) set at home; 40% carried the HC required for the day with them. Globally, the patients self-perceived, subjective knowledge level was not good, a severe lack of knowledge had been identified concerning the knowledge of risk factors of AI. Conclusion: The present study shows the urgent need to develop a structured and continuous education of patients with adrenal insufficiency to improve their self-management of the disease.

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